Losing a loved one
As you may have read, my father-in-law and great friend is dying. Not sure why I am posting here except to just let some pain out. He was diagnosed with CJD last week, which is an incurable form of madcow disease that affects the brain; it's terrible. Not sure how he got it; either by ingesting infected meat (years ago perhaps; it can lay dormant for 20-30 years before showing. Once it shows you have 2 months roughly to live.) Currently he is in a sleeping state and they removed the feeding tube. He will be transported to a hospice later today where he will pass away comfortably...we don't know when. I am enraged and clawing at the walls trying to surf the web for some kind of something for a cure. I am not a doctor, I am just trying to do something, anything. His brain is not dead, he is in there! Trapped in his body which will not work due to the neurological destruction of a buildup of protein cells on brain cells. There has to be something to remove the buildup so they can function but there is nothing except experimental drugs which are not proven to work. He still has his memory, but these cells seem to infect the brain, preventing talking, eating, seeing, moving, basically any motor skills. For the last 2 weeks he has been "sleeping" with the occasional tearing from his eyes when we talk to him on our daily visits, which we know it's him crying...that sux. In all these cases people pass away. I cannot accept this and it's very unfair. I'm losing my very close friend and we didn't even get to do all the things I wanted to do like more baseball games, horse racing (he loves that), etc. This is really hard.....just thought I would vent.
There is a case of a 25 year old girl that has this as well. Her parents are force feeding her and she has been alive for close to 2 years with this. She does nothing though, but sleep, as if in a coma. It's like having a large life-sized doll and that is it. They refuse to let her go and are keeping her around until a cure is found. They know it is "wrong" but they can't let her go and in the end they know they are delaying the inevitable.
It's upsetting and I am seeing life in yet a different angle. He has told me he would never want to be like this. It is hard knowing he is just laying there waiting to die and doctors are like...well, that's how it is, there is no cure...we are sorry. I know that's life............it's BS! We were just having a beer 5 weeks ago....it's a terrible downhill battle that progresses very fast. Our lives are turning around.......he was only 61 and in perfect health before this BS!
Thanks for reading and I wish you and your families well !
Last edited by shredmaster; 05-22-2006 at 11:34 AM.